Special Spaces is a 501(c)(3) nonprofit organization and our mission is simple but zealous. It is to create dream bedrooms for children with life threatening illnesses; a place that only the child can dream of or imagine while addressing their medical needs. Special Spaces was founded on the precedent that children battling a life threatening illness need their own special space. It should be a special space of hope and inspiration and a place to find peace and comfort.
John will be turning 3 on November 19th. He has been diagnosed with a brainstem tumor called DIPG – Diffuse Intrinsic Pontine Glioma. This is cancerous and inoperable. It is located in a part of the brain that controls vital functions. Most children with this kind of tumor survive a mere 9-12 months from the time of diagnosis.
John presented symptoms the first week of October, 2013. He was admitted and diagnosed at Women and Children’s Hospital in Buffalo and will begin radiation treatment at Roswell Park Cancer Institute on October 20th. The radiation will likely shrink the tumor for a period of time; however, this disease progresses rapidly with very few options beyond a single course of radiation that have proven effective. You can read more about John and his family on John’s Web site: John’s Journey
If your company or organization would like to sponsor John or any of the children on our waiting list, please contact Lynn via this link or through the menu above.
Angel’s bedroom makeover has been postponed, but it will be taking place shortly after John’s! We just wanted to keep all of our fans informed!